Request for Proposal for the provision of services to enhance National Clinical Quality Registries

The Department is seeking Proposals from relevant organisations and/or consortia, for the following Services. A lead organisation for the consortia should be declared, this organisation will hold the legal obligations under any contract that may be entered into.

Project 1- patient-friendly tools and resources for consumers

The Department is seeking proposals to create new – or further enhance existing – CQR tools/resources designed specifically for consumers. The purpose of these tools/resources is to help patients, and/or their families and carers to:

• understand more about their treatment processes and treatment outcomes;
• weigh up different treatment options with their doctor; and/or
• compare their outcomes or experiences to others with the same condition, or who have undergone the same treatment.

Project 2 - establishing best practice for registry-based trials

The Department is seeking proposals to develop a publicly available, practical Guide on the use of CQRs as a platform for clinical trials.

The purpose of the Guide is to increase understanding of:

• the types of CQRs and interventions that are most suitable for registry-based trials
• what resources, capacity, and capability is required for a CQR to conduct registry-based trials
• best practice methodologies and approaches for undertaking registry-based trials
• how to evaluate registry-based trials for value and impact

The Guide should be tailored for three key audiences: national CQR operators; clinical trial researchers; and policy makers/ funders. It must also include practical resources, such as decision trees, checklists, etc, as appropriate.